Sofie is 27 and has been struggling with endometriosis since she was a teen.
Now she’s instructed Newsbeat she desires a complete hysterectomy – an operation to take away her womb – to assist ease the signs of her situation.
Lena Dunham – who’s suffered with endometriosis for years – revealed this week she’d had the operation.
Endometriosis is a situation which impacts one in 10 girls and might trigger power ache, heavy durations, painful intercourse and despair.
“It is ache and discomfort, particularly across the time of your interval,” Sofie explains.
“Again ache, migraines and fatigue – additionally despair and nervousness.
“It is absolutely the worry of being out with family and friends – and never having sanitary towels, spare underwear or ache medicine.
“That is why you may discover a lot of individuals with endometriosis are inclined to cancel a lot of plans and actions with associates.”
Like Lena Dunham, Sofie says she desires to have a hysterectomy so she will be able to take again management of her physique – and her life.
She has a six-year-old son Jacob who she says “is “completely wonderful” however she says with the ability to have him was “an enormous journey”.
Like many ladies with endometriosis, Sofie struggled to conceive and has had three miscarriages.
“I by no means needed a couple of baby anyway, particularly when the signs and the unwanted effects of my endometriosis bought worse.
“I needed to ask myself what was extra essential – having extra youngsters or being wholesome and being there for my son.
“If a hysterectomy takes away doubtlessly a few of the burden of my unhealthy well being, to me it is value doing that, to be joyful and wholesome for my son.”
In the intervening time, Sofie will get a month-to-month hormonal injection which she says helps to ease her signs.
She describes them as “completely horrific” and says the unwanted effects are “intense”.
“I hope that at some point I can have a hysterectomy.”
What’s a hysterectomy and might it assist deal with endometriosis?
There’s at present no remedy for endometriosis however there are therapies that may assist ease the signs.
They embody taking painkillers, hormone medicines and contraceptives and surgical procedure to chop away patches of endometriosis tissue.
A hysterectomy is a surgical process to take away the womb (uterus) and it will probably assist ease the signs of endometriosis.
Throughout a hysterectomy, the womb is eliminated and the affected person might also have her cervix or ovaries eliminated, relying on her private circumstances.
“A hysterectomy doesn’t remedy all signs of endometriosis and positively isn’t a remedy for the entire illness,” advisor gynaecologist Sanjay Vyas tells Newsbeat.
He says the process “could also be a part of the surgical therapy, however that must be tailor-made for particular person girls.
“They could want extra advanced therapy.”